4+ years ago we were all devastated by Blake's diagnosis. I have been guilty of running the "what if" scenarios in my mind. Believe me, I have imagined every scenario possible. I've worried and worried until my guts ached..... and, I know I'm not the only one. And here we are.... 4 years later. Blake is STILL working full time and is doing fairly well. He's definitely had many ups & downs but he's still here with us! *Thankful!* *Blessing!* It certainly hasn't been a walk in the park, but Blake has endured the unimaginable with fight and determination. 4 years ago, Blake believed he'd endure............ now.... (finally) I BELIEVE! I'm not constantly thinking about "it" and worrying about "it" and life is becoming somewhat normal! I gave cancer too much credit..... too much power.... "it" doesn't have control. Blake's in charge. He's strong and stubborn and he's not giving in.....
After 50+ chemo treatments, changing the chemo schedule from every 2 weeks appears to be a good choice. He's had 1 chemo on this 3-week cycle and he really bounced back quickly. His hair even seems to be bouncing back! He'll have 1 more treatment before a PET scan in mid-January. His tumor marker dropped to 3.8 so I'm hoping the scan will be good as well.
Hope everyone had a Merry Christmas! We certainly did!
Happy New Year! I hope 2012 brings health and prosperity us all!!
With love, Kathy
Wednesday, December 28, 2011
Friday, November 25, 2011
Thankful
Long time, no posts!!
Like I said before, things have definitely changed. The side effects of chemo are becoming more difficult. A few weeks ago, Blake missed work 3 days in-a-row. That has never happened. NEVER. It really threw everyone into a tail spin! But, once again, he quickly recouped and made it back to work. How does he do it, you say? I. HAVE. NO. IDEA!
Blake had a PET scan in early November. Unfortunately, the tumors still showed but (luckily) weren't as "metabolically active." Even though you could still see the tumors, it still showed another good response to chemo. This is absolutely amazing considering how many treatments he's had of this same chemo!
Dr. Whisenant suggested dropping one of the three chemo drugs - he feels like the treatment is possibly becoming worse then the disease - we certainly know it's affecting his quality of life. Dr. W said that dropping 1 drug wouldn't make much difference in the long run. Blake thought about it but respectfully declined saying that he wanted to beat back the chemo a little more. He asked if he could stretch out the treatments from every 2 to 3 weeks and Dr. W agreed. So, Blake will get a chemo treatment in early December and then again.... AFTER CHRISTMAS!! Yay!
Lately it's seemed like everyday should be Thanksgiving..... While we've had some very rough times, I am so very-very thankful that Blake has done far better then anyone expected and continues to be a strong warrior against the beast. We had Thanksgiving dinner with many of the Mair family members yesterday. While it wasn't mentioned verbally, I know everyone was very thankful that their Son, Brother, Uncle, Dad and my Husband continues to defy the odds and beat any time frame or expectation he's been given.
Thanks for your prayers. I know they really help!!
With love,
Kathy
Like I said before, things have definitely changed. The side effects of chemo are becoming more difficult. A few weeks ago, Blake missed work 3 days in-a-row. That has never happened. NEVER. It really threw everyone into a tail spin! But, once again, he quickly recouped and made it back to work. How does he do it, you say? I. HAVE. NO. IDEA!
Blake had a PET scan in early November. Unfortunately, the tumors still showed but (luckily) weren't as "metabolically active." Even though you could still see the tumors, it still showed another good response to chemo. This is absolutely amazing considering how many treatments he's had of this same chemo!
Dr. Whisenant suggested dropping one of the three chemo drugs - he feels like the treatment is possibly becoming worse then the disease - we certainly know it's affecting his quality of life. Dr. W said that dropping 1 drug wouldn't make much difference in the long run. Blake thought about it but respectfully declined saying that he wanted to beat back the chemo a little more. He asked if he could stretch out the treatments from every 2 to 3 weeks and Dr. W agreed. So, Blake will get a chemo treatment in early December and then again.... AFTER CHRISTMAS!! Yay!
Lately it's seemed like everyday should be Thanksgiving..... While we've had some very rough times, I am so very-very thankful that Blake has done far better then anyone expected and continues to be a strong warrior against the beast. We had Thanksgiving dinner with many of the Mair family members yesterday. While it wasn't mentioned verbally, I know everyone was very thankful that their Son, Brother, Uncle, Dad and my Husband continues to defy the odds and beat any time frame or expectation he's been given.
Thanks for your prayers. I know they really help!!
With love,
Kathy
Wednesday, October 26, 2011
4 YEARS
Last Monday (10/24) was the 4-year mark from when we found out Blake had colon cancer and that he needed to get into a colorectal surgeon ASAP. An appt was scheduled with the surgeon where we learned that the "tumor" needed to come out. Not only did we not know the stage, we had no idea that it had spread to the liver as well. Seeing a few diagrams in the room, I asked what stage? Stage 4, OK.... how many stages? 4 stages.
We left the surgeons office in a fog. I fell apart in the parking lot but Blake didn’t, he never really did. He just held me and told me everything would be fine. He was calm and collected. I'm not sure he realized he was in a fight for his life, but he was steadfast that everything would be okay. Telling the kids was rough. Blake was with Jenny & Cody and I was with Jess, Tanner & Danielle. Many tears were shed that night but Blake continued to assure us all that everything would be fine.
Blake has proven he's an amazing fighter & has a will and determination like no other. He has "messed with the stats" by surpassing any timeframe given. Yesterday, he said "I wish the "C" would just give up." It’s safe to say we all feel the same way.
It seems he’s feeling a little better today but last few days have been a struggle. I'm not sure if it's the cancer or the side effects of chemo - but he's frustrated, discouraged and very, very tired. Even though it's the same chemo he's had dozens of times before, it's really different this time. The last 4 treatments have been brutal. Could you please do me a favor? Could you please throw some good-wishes, positive thoughts & prayers our way? He has done so well.... in the last 4 years, he's been able to proudly watch his family grow and mature into fine young adults, he's met 2 more granddaughters, we've had some wonderful times with family & friends, etc. - all while he’s worked FULL TIME! Please pray that Blake will get this wish and the "C" will just go away.
Thank you for caring. We love you all.
Kathy
We left the surgeons office in a fog. I fell apart in the parking lot but Blake didn’t, he never really did. He just held me and told me everything would be fine. He was calm and collected. I'm not sure he realized he was in a fight for his life, but he was steadfast that everything would be okay. Telling the kids was rough. Blake was with Jenny & Cody and I was with Jess, Tanner & Danielle. Many tears were shed that night but Blake continued to assure us all that everything would be fine.
Blake has proven he's an amazing fighter & has a will and determination like no other. He has "messed with the stats" by surpassing any timeframe given. Yesterday, he said "I wish the "C" would just give up." It’s safe to say we all feel the same way.
It seems he’s feeling a little better today but last few days have been a struggle. I'm not sure if it's the cancer or the side effects of chemo - but he's frustrated, discouraged and very, very tired. Even though it's the same chemo he's had dozens of times before, it's really different this time. The last 4 treatments have been brutal. Could you please do me a favor? Could you please throw some good-wishes, positive thoughts & prayers our way? He has done so well.... in the last 4 years, he's been able to proudly watch his family grow and mature into fine young adults, he's met 2 more granddaughters, we've had some wonderful times with family & friends, etc. - all while he’s worked FULL TIME! Please pray that Blake will get this wish and the "C" will just go away.
Thank you for caring. We love you all.
Kathy
Wednesday, October 12, 2011
Hello! We've been pretty busy so I'll use that as my excuse for not updating sooner.
To be honest, things have been rough but Blake continues to be a trooper. He had a few scary episodes where his vision would go blurry, then complete blackness, then eventually go back to normal. Thankfully, a brain MRI showed NO cancer in the brain! Phew! But, we still don't know what the problem is. The Onc wants him to go to a Neurologist if he has any more episodes (which he has.... but only one) so we'll see how it goes.
Last Wednesday he had his 3rd chemo. It seems he's having another good response to chemo - his tumor marker decreased from 4.8 to 4.3. Not a huge drop but definitely moving in the right direction. The chemo is the same one he's been on but this time the symptoms are very different! His hair really started falling out the day after his 2nd treatment so now he has a shaved head. He still doesn't look, or act, like a cancer patient. He still gets up & goes to work most days. He has had to stay home more often then usual (which was NEVER!) but hopefully we'll find the right combination to get the symptoms/side effects under control so he can continue to work. I truly believe working - having a purpose outside of our home & not in the "cancer" world, really keeps him going and I'm grateful for that.
We are also grateful for YOU; our friends & family who care & are concerned. It's important for everyone to know that Blake has surpassed any timeframe he's been "given" and continues to kick cancer's @ss! :) Please continue to throw some prayers, good wishes, swinging chickens, or positive thoughts our way. The journey has gotten tougher and we can use all the help we can get.
With love,
Kathy
To be honest, things have been rough but Blake continues to be a trooper. He had a few scary episodes where his vision would go blurry, then complete blackness, then eventually go back to normal. Thankfully, a brain MRI showed NO cancer in the brain! Phew! But, we still don't know what the problem is. The Onc wants him to go to a Neurologist if he has any more episodes (which he has.... but only one) so we'll see how it goes.
Last Wednesday he had his 3rd chemo. It seems he's having another good response to chemo - his tumor marker decreased from 4.8 to 4.3. Not a huge drop but definitely moving in the right direction. The chemo is the same one he's been on but this time the symptoms are very different! His hair really started falling out the day after his 2nd treatment so now he has a shaved head. He still doesn't look, or act, like a cancer patient. He still gets up & goes to work most days. He has had to stay home more often then usual (which was NEVER!) but hopefully we'll find the right combination to get the symptoms/side effects under control so he can continue to work. I truly believe working - having a purpose outside of our home & not in the "cancer" world, really keeps him going and I'm grateful for that.
We are also grateful for YOU; our friends & family who care & are concerned. It's important for everyone to know that Blake has surpassed any timeframe he's been "given" and continues to kick cancer's @ss! :) Please continue to throw some prayers, good wishes, swinging chickens, or positive thoughts our way. The journey has gotten tougher and we can use all the help we can get.
With love,
Kathy
Monday, September 12, 2011
Blake had chemo last Wednesday - it's the same chemo he's been on previously because it really seems kick back and keep the tumors at bay. He seems to be doing pretty well overall but something's different. I thought the break would have made the treatment more tolerable but his guts don't seem to be cooperating. As you know, he rarely complains and it breaks my heart to see him suffer. We've made a few changes that (hopefully) will help.
Our newest grandbaby (Hudsyn) was born 3 1/2 weeks early weighing in at 5lbs 4oz 18 1/2 inches. She's a cutie and looks just like her sisters.
Hope everyone is well.
Kathy
Our newest grandbaby (Hudsyn) was born 3 1/2 weeks early weighing in at 5lbs 4oz 18 1/2 inches. She's a cutie and looks just like her sisters.
Hope everyone is well.
Kathy
Monday, August 29, 2011
Colonoscopy results
Once again, Dr. Kim found the cause of the pain. It is a tumor on the outside of the colon that has grown inward into the colon. He thinks the tumor itself is causing pain. It may also be leaking causing pain and could be responsible for his low-grade fevers.
The only way to fix this is surgery - cut the tumor out of the colon & put it back together. But, Dr. Kim said Blake has too much scar tissue in his abdomen to recommend surgery. The only time he would do surgery is if the tumor caused a blockage or completely ruptured the colon wall.
So, whatdoyoudonow you ask? Right now, chemo is the best option. Blake has always responded well to chemo and Dr. Kim is optomistic he'll continue to do so. The spot they took the biopsy needs a few days to heal & then he'll be ready to start chemo sometime next week.
Thanks for your calls & sweet comments last week. They mean more to us then you'll ever know.
Much love,
Blake & Kathy
The only way to fix this is surgery - cut the tumor out of the colon & put it back together. But, Dr. Kim said Blake has too much scar tissue in his abdomen to recommend surgery. The only time he would do surgery is if the tumor caused a blockage or completely ruptured the colon wall.
So, whatdoyoudonow you ask? Right now, chemo is the best option. Blake has always responded well to chemo and Dr. Kim is optomistic he'll continue to do so. The spot they took the biopsy needs a few days to heal & then he'll be ready to start chemo sometime next week.
Thanks for your calls & sweet comments last week. They mean more to us then you'll ever know.
Much love,
Blake & Kathy
Wednesday, August 24, 2011
Change of plans..........
No chemo today. Blakes been having consistent pain so Dr. Whisenant spoke with Blake's surgeon Dr. Kim. They decided it would be best for Dr. Kim to take a look at Blake to see if he thought surgery may be an option for pain relief. Dr. W really thinks he may have some scar tissue that's causing the pain. Some of you will remember the horrible pain he had in May 2010? That ended up being scar tissue.
We saw Dr. Kim this afternoon and he thinks it's tumor pain. Ugh. He's going to do a colonoscopy on Monday to double check something that was on the scan. In the scan, they couldn't tell if the mass was IN or ON the colon. He thinks he'll be able to see it directly or it may be visible through the colon wall. If the mass is IN the colon, he may be able to remove it during the procedure.
I'll let you know how it goes on Monday.
In the meantime, Live Laugh & Love!
Kathy
We saw Dr. Kim this afternoon and he thinks it's tumor pain. Ugh. He's going to do a colonoscopy on Monday to double check something that was on the scan. In the scan, they couldn't tell if the mass was IN or ON the colon. He thinks he'll be able to see it directly or it may be visible through the colon wall. If the mass is IN the colon, he may be able to remove it during the procedure.
I'll let you know how it goes on Monday.
In the meantime, Live Laugh & Love!
Kathy
Wednesday, August 17, 2011
".......... time to get back to work!........."
Well, it's been a nice 4-month break but I think I jinxed us! I really do! I was talking with a dear friend last week & going on and on about how well Blake was doing! That same night, he had such severe abdominal pain I was sure we'd end up in the ER. Thankfully, no ER and in typical Blake fashion, he was up & off to work the next morning.
Blake saw Dr. Whisenant last Friday.... the machine that processes the tumor marker (CEA) broke down so we weren't able to find out the CEA and without that and based on his symptoms, they felt it was best to order a PET scan which was completed Tuesday morning.
On Tuesday, we found out that tumor marker jumped, increasing from 2.4 to 4.2. :( The PET showed 2 tumors with SUV (standard uptake value - aka "hot spots.") Anything over 2.5-3 ish is usually active cancer. The two spots were 8.3 & 5.0 which means they are active/growing.
We knew this was only a "break" but......... (how do I say this?...) it simply BITES!
Of course, starting back on chemo is completely Blakes decision and with his typical awesome attitude, he said "well, I guess the break is over" and, "I guess it's time to get back to work!" Next week, Blake will have chemo & will continue every other week until the next break. Everyone at the chemo center is wonderful and it will be nice to see them again - wish it was just to say HI!
In October, it will be 4 years since Blake was diagnosed with this horrid disease. Did you hear that? 4! F.O.U.R. YEARS! He's faced the beast on his own terms and has amazed the experts. He's officially "messing with the stats!"
Fight on, My Dear Sweet Man (tough, rugged and handsome too!) Fight On!
Live, Laugh & Love,
Kathy
PS. Just a shout out to our awesome kids!! Jess, Dal & girls will be welcoming their daughter within the next few weeks.... so exciting! Tanner is busy working @ UP and being a bachelor. Jenny is busy working and is continuing her education at SLCC. Cody is feeling much better and is excited to start SUU next week and Danielle is looking into school opportunities, working and has a new baby... a PUPPY! LOL!!
Blake saw Dr. Whisenant last Friday.... the machine that processes the tumor marker (CEA) broke down so we weren't able to find out the CEA and without that and based on his symptoms, they felt it was best to order a PET scan which was completed Tuesday morning.
On Tuesday, we found out that tumor marker jumped, increasing from 2.4 to 4.2. :( The PET showed 2 tumors with SUV (standard uptake value - aka "hot spots.") Anything over 2.5-3 ish is usually active cancer. The two spots were 8.3 & 5.0 which means they are active/growing.
We knew this was only a "break" but......... (how do I say this?...) it simply BITES!
Of course, starting back on chemo is completely Blakes decision and with his typical awesome attitude, he said "well, I guess the break is over" and, "I guess it's time to get back to work!" Next week, Blake will have chemo & will continue every other week until the next break. Everyone at the chemo center is wonderful and it will be nice to see them again - wish it was just to say HI!
In October, it will be 4 years since Blake was diagnosed with this horrid disease. Did you hear that? 4! F.O.U.R. YEARS! He's faced the beast on his own terms and has amazed the experts. He's officially "messing with the stats!"
Fight on, My Dear Sweet Man (tough, rugged and handsome too!) Fight On!
Live, Laugh & Love,
Kathy
PS. Just a shout out to our awesome kids!! Jess, Dal & girls will be welcoming their daughter within the next few weeks.... so exciting! Tanner is busy working @ UP and being a bachelor. Jenny is busy working and is continuing her education at SLCC. Cody is feeling much better and is excited to start SUU next week and Danielle is looking into school opportunities, working and has a new baby... a PUPPY! LOL!!
Friday, August 12, 2011
Interesting article/update
http://www.nytimes.com/2011/08/12/business/heated-chemotherapy-bath-may-be-only-hope-for-some-cancer-patients.html?_r=2&ref=health&pagewanted=all
This is a very interesting article that details (and even provides a slideshow) about the HIPEC procedure that we hoped Blake would receive last spring. We all know how that turned out....
This article shows the controversy in the procedure but also gives a fairly-good overview of the procedure itself. You may even want to check out the slideshow. It's really isn't too graphic.
Dr. Whisenant feels we may be able to revisit the idea this coming spring. But with Blake tolerating treatment as well as he has, why fix it if it's not broken? Right now, he's still on a chemo break but I'm not sure how much longer it will last. He's starting to get symptoms of.... something amiss.... Who knows what it is, but I'm guessing they'll schedule a scan soon. We see Dr. W this afternoon & I'll let you know how it goes.
In the meantime.................
Live, Love & Laugh!! :)
Kathy
P.S. They're scanning Blake on Tuesday. Don't know the tumor marker yet - machine malfunction? We should have it on Monday. I'll update when we know more.
This is a very interesting article that details (and even provides a slideshow) about the HIPEC procedure that we hoped Blake would receive last spring. We all know how that turned out....
This article shows the controversy in the procedure but also gives a fairly-good overview of the procedure itself. You may even want to check out the slideshow. It's really isn't too graphic.
Dr. Whisenant feels we may be able to revisit the idea this coming spring. But with Blake tolerating treatment as well as he has, why fix it if it's not broken? Right now, he's still on a chemo break but I'm not sure how much longer it will last. He's starting to get symptoms of.... something amiss.... Who knows what it is, but I'm guessing they'll schedule a scan soon. We see Dr. W this afternoon & I'll let you know how it goes.
In the meantime.................
Live, Love & Laugh!! :)
Kathy
P.S. They're scanning Blake on Tuesday. Don't know the tumor marker yet - machine malfunction? We should have it on Monday. I'll update when we know more.
Friday, July 15, 2011
Unbelievable
Hello!! Just a quick update........... Blake had a blood test this week..... HIS CEA DROPPED to 2.4!! We really needed some good news this week and feel incredibly blessed.
We get to play for another month!!! I'm so excited! Bring on the fun!! :)
Thank you for your love, support & prayers. Please keep sending them!
Live, Love & Laugh!
Always, Kathy
We get to play for another month!!! I'm so excited! Bring on the fun!! :)
Thank you for your love, support & prayers. Please keep sending them!
Live, Love & Laugh!
Always, Kathy
Sunday, July 3, 2011
Summer Living!!
I haven't posted much lately but wanted to let you all know that Blake is doing really well! He's gaining strength - and hair - every day! We've been pretty busy LIVING!! We highly suggest it, it's been a blast!
Live, Love & Laugh!!
Live, Love & Laugh!!
Sunday, June 12, 2011
Summer's ON!
Blake saw Dr. Whisenant this past week to go over the PET scan results & blood tests. As mentioned before, the PET scan results were awesome! The tumor marker went up a little from 2.5 to 2.8. We're not too concerned about this small increase and pretty much expected it. Blake's been off chemo for almost 8 weeks & so it's eventually going to increase. We're grateful the increase wasn't huge.
Dr. Whisenant said he'd do another scan in 3-4 months unless Blake becomes symptomatic. Previously, he had scans ever 2 months or so because they were watching to know when to start chemo again. Unless Blake becomes symptomatic, there's no need to do unnecessary scans.
Blake has an appt with an Orthopedic next week to see if he can get some help with his joint, leg & knee pain. It's pretty bad - last week his joints in his hands hurt substantially and his knee was really acting up.... I hope they can offer him some type relief. Dr. Whisenant said the problem is more then likely a side effect of the chemo treatments. Another example of the treatment being worse then the disease.....
Hope everyone is enjoying their Summer (or is it Fall here??).
Live, Love & Laugh!
Kathy
Dr. Whisenant said he'd do another scan in 3-4 months unless Blake becomes symptomatic. Previously, he had scans ever 2 months or so because they were watching to know when to start chemo again. Unless Blake becomes symptomatic, there's no need to do unnecessary scans.
Blake has an appt with an Orthopedic next week to see if he can get some help with his joint, leg & knee pain. It's pretty bad - last week his joints in his hands hurt substantially and his knee was really acting up.... I hope they can offer him some type relief. Dr. Whisenant said the problem is more then likely a side effect of the chemo treatments. Another example of the treatment being worse then the disease.....
Hope everyone is enjoying their Summer (or is it Fall here??).
Live, Love & Laugh!
Kathy
Thursday, June 2, 2011
NO metabolic activity
Blake had a PET scan yesterday.... it showed.... NOTHING! The report said there is NO metabolic activity! We see the Onc next week but I'm guessing he won't be scanned until August. It looks like Blake will be able to avoid chemo for the summer! Yay!!
If Blake has 3 clear scans while NOT on chemo, he'll be considered NED (no evidence of disease). NED used to be called "in remission." Blake was NED from May 2008 to July 2009. Is it realistic to think he'll be NED again? Have you met Blake? He keeps defying all the odds and we are grateful beyond words. The disease volume is low & small enough to not be detected on a scan. I like to think of it as dormant; we know it's there - it's just not growing right now. But until we see it, it's all systems go on the fun meter!! lol
We went camping last weekend, a graduation yesterday, a graduation party for the girls last night & another graduation tomorrow. We've been pretty busy - having the summer we've been hoping for!
Life is good & we are blessed. Take care everyone!
Live, Love & Laugh
If Blake has 3 clear scans while NOT on chemo, he'll be considered NED (no evidence of disease). NED used to be called "in remission." Blake was NED from May 2008 to July 2009. Is it realistic to think he'll be NED again? Have you met Blake? He keeps defying all the odds and we are grateful beyond words. The disease volume is low & small enough to not be detected on a scan. I like to think of it as dormant; we know it's there - it's just not growing right now. But until we see it, it's all systems go on the fun meter!! lol
We went camping last weekend, a graduation yesterday, a graduation party for the girls last night & another graduation tomorrow. We've been pretty busy - having the summer we've been hoping for!
Life is good & we are blessed. Take care everyone!
Live, Love & Laugh
Wednesday, May 25, 2011
Quick update
Hi All! It's been a busy couple weeks and, thankfully, nothing cancer related. Blake's been feeling good and we were able to go camping & had a great time!
We're also excited that our youngest girls are graduating next week! They were 4 when we got married.... Wow, what a ride it's been! Blake is also scheduled for a PET scan next week. It seems like forever since he's had a scan & I'm trying really hard to fight off the "scanxiety!" He's been pretty worn out lately & has had some pretty severe leg aches. It's so hard and frustrating that he can't have just a regular leg ache, cold, headache, etc. without my heart & brain racing thinking it's the dang cancer. Trust me, I try not to - but, let's be real - who wouldn't think like that? It's easy to say - "don't think like that" - but unrealistic to implement. Please pray, send good thoughts, swing chickens, chant, or whatever you do for a clean scan next week. We know that eventually the beast will catch up but, please let us have a nice summer.
I read this quote recently and love it. I know Blake has never thought beating this disease was Impossible.
"Impossible is an opinion, not a fact. Impossible isn't a declaration, it's a dare. Impossible is potential. Impossible is temporary. Impossible is nothing." -Kris Carr
Live, Love & Laugh........
Wednesday, May 11, 2011
Summer break
The appt with Dr. Whisenant on Friday went really well; I mean, really well! Everyone was so up-beat and positive we just laughed & smiled the whole time. What a great atmosphere! Cancer center = Great atmosphere.... sounds like an oxy-moron, doesn't it? We see him again in a month to go over the PET scan that's scheduled for June 1st.
Blakes CEA remained stable at 2.6 so he's officially on a chemo break! YAY! Hopefully, it will be a nice, long one like last year!
How's this for a blessing in disguise? An acquaintance had the HIPEC surgery this past March.... she just found out her cancer is back; a brief 2 months later. Obviously, this doesn't mean that would have happened to Blake but, maybe this is the reason we were denied? Who knows, but I sure feel bad for her.
Take care everyone! Love, Kathy
Blakes CEA remained stable at 2.6 so he's officially on a chemo break! YAY! Hopefully, it will be a nice, long one like last year!
How's this for a blessing in disguise? An acquaintance had the HIPEC surgery this past March.... she just found out her cancer is back; a brief 2 months later. Obviously, this doesn't mean that would have happened to Blake but, maybe this is the reason we were denied? Who knows, but I sure feel bad for her.
Take care everyone! Love, Kathy
Wednesday, May 4, 2011
No more chemo?
Hi there!
Blake did not have his scheduled chemo today. On Monday, he was barely awake for 3 hours so we decided he's had enough. Of course, Tuesday he went to work and has easily worked 10-12 hours Tuesday & today. I don't know how he does it, but I love it (not the hours but the drive & determination!)
He sees Dr. Whisenant on Friday and I'm sure they'll schedule a scan very soon. Not much more to report.
On a side note, our granddaughter swallowed an almost quarter sized battery last Sunday. They were able to surgically remove it at Primary Children's Hospital; thank God for good Doctors. It's scary to think of the damage the battery acid could have done. Hopefully, she won't have any lasting effects. It's important to know that the battery came out of a remote control and I know all of us have those laying around! I had a friend (logically) ask if it was an AA battery.... When did they change out the batteries to these small, expensive, round discs? Crazy.
That's it for now..... I'll let you know how the Dr. visit goes on Friday.
Until then, Live, Love & Laugh
Kathy
Blake did not have his scheduled chemo today. On Monday, he was barely awake for 3 hours so we decided he's had enough. Of course, Tuesday he went to work and has easily worked 10-12 hours Tuesday & today. I don't know how he does it, but I love it (not the hours but the drive & determination!)
He sees Dr. Whisenant on Friday and I'm sure they'll schedule a scan very soon. Not much more to report.
On a side note, our granddaughter swallowed an almost quarter sized battery last Sunday. They were able to surgically remove it at Primary Children's Hospital; thank God for good Doctors. It's scary to think of the damage the battery acid could have done. Hopefully, she won't have any lasting effects. It's important to know that the battery came out of a remote control and I know all of us have those laying around! I had a friend (logically) ask if it was an AA battery.... When did they change out the batteries to these small, expensive, round discs? Crazy.
That's it for now..... I'll let you know how the Dr. visit goes on Friday.
Until then, Live, Love & Laugh
Kathy
Tuesday, April 26, 2011
No fish for you!
Many of you know that Blake is allergic to fish that have scales. His allergy is pretty-much opposite most "fish" allergies. He can eat shell fish & fish without scales (cod & halibut).... well, I guess I should say could eat.
We had a yummy cod dinner last night. Later that night Blake came down with a horrible case of the "itchies!" He developed hives right before my eyes & began to wheez. I got a little panicked - off to the hospital we go!
When we got to the ER, poor Blake had hives all over his body and his throat was starting to close off! YIKES. They gave him epinephrin, benadryl & some other drug that made his heart rate soar! After an exciting 2 1/2 hours, we were on our way home.
I guess his immune system has been compromised so much that he can't eat cod anymore. I'm sure it applies to his other favorites too; halibut, shrimp & crab. Bummer.
Live, Love & don't forget to Laugh! Kathy
We had a yummy cod dinner last night. Later that night Blake came down with a horrible case of the "itchies!" He developed hives right before my eyes & began to wheez. I got a little panicked - off to the hospital we go!
When we got to the ER, poor Blake had hives all over his body and his throat was starting to close off! YIKES. They gave him epinephrin, benadryl & some other drug that made his heart rate soar! After an exciting 2 1/2 hours, we were on our way home.
I guess his immune system has been compromised so much that he can't eat cod anymore. I'm sure it applies to his other favorites too; halibut, shrimp & crab. Bummer.
Live, Love & don't forget to Laugh! Kathy
Wednesday, April 20, 2011
And now he sleeps.....
I guess I missed updating last week..... Sorry. Blake's sound asleep beside me right now - so, I'll quickly post an update.....
After finishing the 2nd round of antibiotics, Blake finally got over his cold/sinus infection and we were able to go camping last weekend! It was WONDERFUL to get out in the nice weather, around a beautiful fire, with great friends & family. When we got home.... everything went down hill!! Ugh. He was soooo sick Sunday night & Monday but quickly bounced back, went to work Tuesday & Wednesday (today) and (as much as I tried to talk him out of it) had chemo again this afternoon. For now, Blake's decided to commit to chemo one treatment at a time from now on. He's scheduled for 1 more chemo & then may take a break - or continue on - depending on how he feels.
Our family has some pretty exciting things happening in the next several months. So, in 'Christmas-letter cheesy-fashion,' I want to mention what's going on with our kids!
Dallas, Jess, Aspen & Irelynn will be having another little girl join their family in September. Dal continues to work hard as a foreman at UP which allows Jess (aka awesome mom) to stay home with their darling daughters. Sweet Aspen goes to pre-school and recently explained to us what inertia meant, that George Washington planted a cherry tree when he was little and that President Lincoln freed the slaves. Really? She's so very smart! Irelynn is an absolute hoot! She is a super-sweet tiny little peanut and is so funny! She'll go to pre-school this fall which should help Jess when the new baby arrives.
Tanner is one of Union Pacific's youngest foreman and is having a blast being a bachelor! I think he's making up for having to put up with 4 sisters growing up!
Jennifer continues to work full time hours @ an OB/GYN office while going to college. She's on track to earn her associates degree this coming fall semester.
Katherine Cody has enjoyed her senior year playing volleyball, studying, working and having a great time. She will graduate this June and will be attending SUU in the fall;
Danielle earned a $500 scholorship for early class completion and will offically graduate high school this June. Elle was also just awarded the manager position at Envy Sun in South Jordan.
I can't even begin to tell you how proud we are of our family. It's crazy to think our babies were 4 when we got married. Now we have grandbabies that age and, our "babies" are "legal" young-adults, graduating high school. We continue to be blessed.
Some of you may remember my dear friend Laurie who passed away almost 3 years ago from breast cancer. She would write in a blog and would always close by saying.....
Live, Love & Laugh......
That sure sounds good to me!
Love, Kathy
After finishing the 2nd round of antibiotics, Blake finally got over his cold/sinus infection and we were able to go camping last weekend! It was WONDERFUL to get out in the nice weather, around a beautiful fire, with great friends & family. When we got home.... everything went down hill!! Ugh. He was soooo sick Sunday night & Monday but quickly bounced back, went to work Tuesday & Wednesday (today) and (as much as I tried to talk him out of it) had chemo again this afternoon. For now, Blake's decided to commit to chemo one treatment at a time from now on. He's scheduled for 1 more chemo & then may take a break - or continue on - depending on how he feels.
Our family has some pretty exciting things happening in the next several months. So, in 'Christmas-letter cheesy-fashion,' I want to mention what's going on with our kids!
Dallas, Jess, Aspen & Irelynn will be having another little girl join their family in September. Dal continues to work hard as a foreman at UP which allows Jess (aka awesome mom) to stay home with their darling daughters. Sweet Aspen goes to pre-school and recently explained to us what inertia meant, that George Washington planted a cherry tree when he was little and that President Lincoln freed the slaves. Really? She's so very smart! Irelynn is an absolute hoot! She is a super-sweet tiny little peanut and is so funny! She'll go to pre-school this fall which should help Jess when the new baby arrives.
Tanner is one of Union Pacific's youngest foreman and is having a blast being a bachelor! I think he's making up for having to put up with 4 sisters growing up!
Jennifer continues to work full time hours @ an OB/GYN office while going to college. She's on track to earn her associates degree this coming fall semester.
Katherine Cody has enjoyed her senior year playing volleyball, studying, working and having a great time. She will graduate this June and will be attending SUU in the fall;
Danielle earned a $500 scholorship for early class completion and will offically graduate high school this June. Elle was also just awarded the manager position at Envy Sun in South Jordan.
I can't even begin to tell you how proud we are of our family. It's crazy to think our babies were 4 when we got married. Now we have grandbabies that age and, our "babies" are "legal" young-adults, graduating high school. We continue to be blessed.
Some of you may remember my dear friend Laurie who passed away almost 3 years ago from breast cancer. She would write in a blog and would always close by saying.....
Live, Love & Laugh......
That sure sounds good to me!
Love, Kathy
P.S. 4-22-2011 Thanks for the picture LF!
Wednesday, April 6, 2011
#35 is in the can....
Yesterday, the NP at the cancer center wanted to delay chemo since Blake's been sick/running a fever for 10+ days. He pretty much told her NO; he doesn't want to delay anything or mess up his summer plans. So, today he went in for chemo #35 and another NP (again) suggested he skip this chemo & even delay it another 2 weeks in order to not mess up his schedule.... He decided to get the chemo anyway - he just doesn't want to get off track. His CEA was 2.6 (previous was 2.5) which is good - so staying on track and keeping the tumors on the run is probably a good thing. I hope he doesn't regret it. We have really been reminded recently how precious life is. While I certainly don't need to be the one to remind everyone to count their blessings, it doesn't hurt to suggest that we all take a minute to sit back and realize that life is good. You just never know what might happen. I know I am grateful that Blake continues to do so well. He's fought this battle with courage and determination and he continues to win. We are blessed. Love to you all, Kathy
Monday, April 4, 2011
Yep, he's pretty hot! :)
Well, Blake still has something; he has been running a fever for a week now (100+.) The Onc wants him to come in tomorrow to run some blood work to see if they can figure out what's going on. It's getting pretty close to scan time so I won't be surprised if they want to go ahead with a scan. Aside from the pretty-consistent evening fever, he seems to feel pretty well. I hope it turns out to be nothing. I'll post to let you know whats going on when we know something. Love, Kathy
Wednesday, March 30, 2011
Cold? Flu? Who knows....
Blake had chemo a week ago & until Sunday was doing REALLY well. BUT, he's since come down with a cold, flu -or- something. He went to work on Monday but came home early and has been home since. He's been running a fever so the Onc put him on a strong anitbiotic. We went to Instacare today and they ruled out pneumonia with a chest x-ray. He's still running a fever -tonight it was 102.4, ugh. It's frustrating not knowing what the problem is! Please send strong thoughts & prayers. Thank you!
Of course, he wants to go to work tomorrow........... Love you all, Kathy
Of course, he wants to go to work tomorrow........... Love you all, Kathy
Wednesday, March 23, 2011
More chemo for now....
We saw Dr. Whisenant last Friday and talked in detail about the HIPEC denial. Do you know that we have fought for approval for 6 months? Dr. Whisenant feels really bad that we've had such trouble with the insurance company. He also told us about a couple of recent HIPEC surgeries that didn't go well. I keep thinking, maybe our prayers WERE answered? Maybe Blake just wasn't supposed to get the surgery. Who knows....
Even though he was given the option to stop, Blake has decided to stay on chemo for now. Dr. Whisenant feels the cancer has responded well to the chemo but, if stopped, it will only be a matter of time until he'll need to start again. How long? No clue, but when he took a break last year he was symptom free for a little while which was a nice break for him. The plan is to manage this beast around Blakes quality of life so he'll stay on chemo for now and take a break starting in May, or so. AND, maybe have a little fun this summer?? I know it will be much different then we had planned! I can't wait!
Blake had another chemo treatment today. I sure hope the next couple days are better then they were last time!
Take care everyone. Love, Kathy
Even though he was given the option to stop, Blake has decided to stay on chemo for now. Dr. Whisenant feels the cancer has responded well to the chemo but, if stopped, it will only be a matter of time until he'll need to start again. How long? No clue, but when he took a break last year he was symptom free for a little while which was a nice break for him. The plan is to manage this beast around Blakes quality of life so he'll stay on chemo for now and take a break starting in May, or so. AND, maybe have a little fun this summer?? I know it will be much different then we had planned! I can't wait!
Blake had another chemo treatment today. I sure hope the next couple days are better then they were last time!
Take care everyone. Love, Kathy
Friday, March 11, 2011
Yay!! tumor marker down!
We just got home from having Blakes friendly pump removed so I thought I'd quickly post to let you know the good news! The tumor marker is down! The CEA went down from 4.0 to 2.5! YAY-oh-YAY-oh-YAY!!
Blake's still absolutely exhausted; he's never been like this before. Usually, he's exhausted once the pump is removed. But, this time he's basically slept from Wednesday night to today and will probably sleep all weekend (which is usual.) We were talking with the chemo nurses about how frustrating it is to not know what could be causing the side-effects. In fact, it may not even be a side effect from chemo - it could just be the flu!
Well, that's it for now! Hope everyone has a great weekend!
Love, Kathy
Blake's still absolutely exhausted; he's never been like this before. Usually, he's exhausted once the pump is removed. But, this time he's basically slept from Wednesday night to today and will probably sleep all weekend (which is usual.) We were talking with the chemo nurses about how frustrating it is to not know what could be causing the side-effects. In fact, it may not even be a side effect from chemo - it could just be the flu!
Well, that's it for now! Hope everyone has a great weekend!
Love, Kathy
Thursday, March 10, 2011
Chin up buttercup!
Thank you all for your kind comments here, on facebook & email. The denial was tough to take but we have to keep our chins up & move forward. If we allow anger to take over, the cancer will get the upper hand & we just can't let that happen!
Blake had chemo yesterday. Usually, chemo is pretty uneventful but for some odd reason his port decided to not work! After about 2 hours, it f.i.n.a.l.l.y began to cooperate! As usual, all his blood counts were within normal range so he received chemo #33. He's running a low grade fever now and even stayed home from work. I'm sure the treatments are just building up; it will be a lay-low & rest weekend. I expect to get his tumor marker results tomorrow & will try to post this weekend to let you know how he's doing.
We're looking forward to seeing Dr. Whisenant on the 18th. It will be nice to get a new plan in place.
Take care everyone & thanks for caring!
Love, Kathy
Blake had chemo yesterday. Usually, chemo is pretty uneventful but for some odd reason his port decided to not work! After about 2 hours, it f.i.n.a.l.l.y began to cooperate! As usual, all his blood counts were within normal range so he received chemo #33. He's running a low grade fever now and even stayed home from work. I'm sure the treatments are just building up; it will be a lay-low & rest weekend. I expect to get his tumor marker results tomorrow & will try to post this weekend to let you know how he's doing.
We're looking forward to seeing Dr. Whisenant on the 18th. It will be nice to get a new plan in place.
Take care everyone & thanks for caring!
Love, Kathy
Wednesday, March 2, 2011
Got the call......
Well, Blake got the call this afternoon and was told that the final appeal was denied. He was told that they "talked about it for a long time" but it was, again, denied.
I'm trying really hard not to be cynical right now.... But, seriously? I find it interesting that with all the substantial data we submitted, all the other insurance companies currently covering the procedures and, detailed letters from 3 doctors who have examined Blake, that they couldn't see the need to approve the procedure. IT.BOGGLES.MY.MIND.
UCSD has offered to have us talk to their financial aid department but I don't think it can be realistically considered. Like I said before, it could easily become an insurmountable cost. A few people have told me to seek foundations who may be willing to fund the procedure but, to be honest, I don't think we can accept any more denials. I'm about to go effing POSTAL! (Sorry to those who don't like that word but I'm just feeling pretty effing bad right now!)
We agreed previously that we would live with whatever the decision was. But, wow this is a hard one to accept! I have to keep reminding myself.... what-if? What if it's just not meant to be? What if this is our message from a higher power saying that it shouldn't be done? (Do you think I'll be punished for saying effing?) To quote and overused phase, "it is what it is."
So much for the chemo break, huh? Back to chemo next week. Thanks for all your thoughts & prayers. Seriously - maybe they worked? Maybe it just wasn't meant to be.
Love to all, Kathy
P.S. I have grown quite fond of a colorful blog called cancerissofunny.blogspot.com
Here are some comics from the blog that are really appropriate today.
I'm trying really hard not to be cynical right now.... But, seriously? I find it interesting that with all the substantial data we submitted, all the other insurance companies currently covering the procedures and, detailed letters from 3 doctors who have examined Blake, that they couldn't see the need to approve the procedure. IT.BOGGLES.MY.MIND.
UCSD has offered to have us talk to their financial aid department but I don't think it can be realistically considered. Like I said before, it could easily become an insurmountable cost. A few people have told me to seek foundations who may be willing to fund the procedure but, to be honest, I don't think we can accept any more denials. I'm about to go effing POSTAL! (Sorry to those who don't like that word but I'm just feeling pretty effing bad right now!)
We agreed previously that we would live with whatever the decision was. But, wow this is a hard one to accept! I have to keep reminding myself.... what-if? What if it's just not meant to be? What if this is our message from a higher power saying that it shouldn't be done? (Do you think I'll be punished for saying effing?) To quote and overused phase, "it is what it is."
So much for the chemo break, huh? Back to chemo next week. Thanks for all your thoughts & prayers. Seriously - maybe they worked? Maybe it just wasn't meant to be.
Love to all, Kathy
P.S. I have grown quite fond of a colorful blog called cancerissofunny.blogspot.com
Here are some comics from the blog that are really appropriate today.
Monday, February 28, 2011
Now we wait....
We met with the appeals committee this afternoon! Blake thinks it went well & that we couldn't have done anything different. It's out of our hands now! They will make the decision today and will let us know "in 10 days."
Thursday, February 24, 2011
Local Surgical Oncologist
We met with an IHC Surgical Oncologist yesterday, Dr. Bowles. What a terrific person. Dr. Bowles' did her fellowship at MD Anderson Cancer Center in Houston, Texas where (among other things)she participated in HIPEC surgeries. So, she has hands-on experience with this procedure. However, she does not currently do HIPEC surgeries here as she (also) believes they should only be done at large centers of excellence such as UCSD and Dr. Lowy. She's familiar with Dr. Lowy and feels he's an excellent Surgical Oncologist.
Dr. Bowles also said that if she was asked to perform -only- the tumor debulking (CRS) surgery, she wouldn't do it even though she technically could. She does not believe that the surgery is beneficial without the hot chemo (HIPEC.) She feels the tumors would come back and that the hot chemo is necessary to have hope in the *( long term outcome of the procedure.
Dr. Bowles was so, so very kind and was willing to write a letter of opinion for us to give the Appeal panel this Monday. We received it this evening and it's very objective and informative and states that she believes Blake is an excellent candidate for the entire procedure. We already have a letter from Dr. Whisenant and expect to receive a letter from Dr. Lowy's office tomorrow. Dr. Lowy was also supposed to talk with SelectHealth's medical director today, I hope to hear that the discussion happened.
We hope the Appeals panel will make their decisions based on information that's been provided by Blakes doctors. I know this is pretty cynical but, do you think they'll even read them?? I mean, seriously! The appeal written to the "Grievance Committee" contained a lot of good, valuable and valid information (actual peer reviewed studies) and they didn't seem to pay much attention to it.
Well, as I said before - I have no idea how this will turn out. UCSD said that if it doesn't get approved that we should contact the UCSD finaicial department and look into private paying for the procedure but there is absolutely no way we could even begin to pay for the procedure - it's an insurmountable cost.
Like I've said before, we just have to have hope, I just don't know what more we can do.
Blake is still pretty tired but seems to be on the up-swing from getting chemo last week. It sure will be nice for him to not have chemo again for a while!!
Love to all, Kathy
Dr. Bowles also said that if she was asked to perform -only- the tumor debulking (CRS) surgery, she wouldn't do it even though she technically could. She does not believe that the surgery is beneficial without the hot chemo (HIPEC.) She feels the tumors would come back and that the hot chemo is necessary to have hope in the *( long term outcome of the procedure.
Dr. Bowles was so, so very kind and was willing to write a letter of opinion for us to give the Appeal panel this Monday. We received it this evening and it's very objective and informative and states that she believes Blake is an excellent candidate for the entire procedure. We already have a letter from Dr. Whisenant and expect to receive a letter from Dr. Lowy's office tomorrow. Dr. Lowy was also supposed to talk with SelectHealth's medical director today, I hope to hear that the discussion happened.
We hope the Appeals panel will make their decisions based on information that's been provided by Blakes doctors. I know this is pretty cynical but, do you think they'll even read them?? I mean, seriously! The appeal written to the "Grievance Committee" contained a lot of good, valuable and valid information (actual peer reviewed studies) and they didn't seem to pay much attention to it.
Well, as I said before - I have no idea how this will turn out. UCSD said that if it doesn't get approved that we should contact the UCSD finaicial department and look into private paying for the procedure but there is absolutely no way we could even begin to pay for the procedure - it's an insurmountable cost.
Like I've said before, we just have to have hope, I just don't know what more we can do.
Blake is still pretty tired but seems to be on the up-swing from getting chemo last week. It sure will be nice for him to not have chemo again for a while!!
Love to all, Kathy
Wednesday, February 16, 2011
FINAL appeal
Our FINAL Appeal is on 2/28 at 3:30. The last time we met with the insurance company was a "Grievance meeting" not a formal appeal. This FINAL Appeal will be heard by a panel of 3 people. A few insurance company employees will be there to "answer any questions." Who knows what will come out of the appeal - but I have to be optimistic that they'll do the right thing.
Blake had chemo again yesterday (#32) & also had an appt with Dr. Whisenant. Dr. Whisenant really believes that SelectHealth is being/will be fair and does have Blakes best interest in mind. Apparently, they've been presented with at least 4 requests for HIPEC in the last 3 months. 2 were for appendix, 1 colon (Blake) and I don't remember the other one. The appendix cases have been approved - but only after an appeal. Appendix cancer is the 1st cancer they started doing HIPEC on so I'm not surprised they were approved.
Dr. Whisenant seems to be laying the ground work so that we won't be devastated if this doesn't get approved. I guess that's a good thing. If Blake doesn't get this procedure it doesn't mean that he'll just immediately go down hill. For now, chemo is still working and keeping the cancer in check and would (hopefully) continue to do so (preferably f-o-r-e-v-e-r!) Constant chemo is just so rough on him. Breaks my heart.
After the pump is disconnected tomorrow, Blake will be on an official chemo break until after the surgery. If it's approved, we'll head down to San Diego the 3rd week of March, if it's completely denied again, they'll put him back on chemo.
March is colon cancer awareness month. If you are 50 or over, PLEASE get a colonoscopy! Thank you.
Love, Kathy
Blake had chemo again yesterday (#32) & also had an appt with Dr. Whisenant. Dr. Whisenant really believes that SelectHealth is being/will be fair and does have Blakes best interest in mind. Apparently, they've been presented with at least 4 requests for HIPEC in the last 3 months. 2 were for appendix, 1 colon (Blake) and I don't remember the other one. The appendix cases have been approved - but only after an appeal. Appendix cancer is the 1st cancer they started doing HIPEC on so I'm not surprised they were approved.
Dr. Whisenant seems to be laying the ground work so that we won't be devastated if this doesn't get approved. I guess that's a good thing. If Blake doesn't get this procedure it doesn't mean that he'll just immediately go down hill. For now, chemo is still working and keeping the cancer in check and would (hopefully) continue to do so (preferably f-o-r-e-v-e-r!) Constant chemo is just so rough on him. Breaks my heart.
After the pump is disconnected tomorrow, Blake will be on an official chemo break until after the surgery. If it's approved, we'll head down to San Diego the 3rd week of March, if it's completely denied again, they'll put him back on chemo.
March is colon cancer awareness month. If you are 50 or over, PLEASE get a colonoscopy! Thank you.
Love, Kathy
Wednesday, February 9, 2011
Scan results
Blakes PET scan results show that the tumors have decreased in size - or - are no longer visable! YAY! At least we know the chemo is working!
No word on the appeal - yet.
Surgery is still scheduled for 3/25
Hope everyone is well!
No word on the appeal - yet.
Surgery is still scheduled for 3/25
Hope everyone is well!
Saturday, February 5, 2011
Last appeal
Hi all! It's official - we've advised the insurance company that we intend to submit our final appeal for HIPEC treatment.
Dr. Whisenant believes Blake will benefit from CRS weather it is followed by HIPEC or not. He said that he would not have recommended the surgery 2 years ago - but is so amazed by how well Blake is doing that he said - why not? Go for it! BUT.... The insurance company is implying that the cytoredcutive surgery (CRS) aka tumor "debulking" will NOT be covered weather HIPEC follows or not. I'm not sure if they're doing this because they think Blake will try to receive the HIPEC anyway (private pay) or if they don't understand that CRS would normally be covered as a standard treatment! I guess you just have to always fight for what you want! Nothing comes easy does it?
Last Wednesday while getting another chemo treatment, we were talking with the chemo nurse about how good Blakes blood work was! It's amazing that, with all the chemo that's been thrown at him, Blake has never had to have chemo delayed, receive a "booster" shot (like neulasta or procrit) or anything because of low/weak blood work! I'm starting to worry that people are going to figure out that he IS Superman!! :)
A PET scan is scheduled for Monday..... I look forward to hearing that it's ALL GOOD because his tumor marker increased this time from 3.1 to 4.0.... Please pray for a good scan. Thanks!
Love, Kathy
Dr. Whisenant believes Blake will benefit from CRS weather it is followed by HIPEC or not. He said that he would not have recommended the surgery 2 years ago - but is so amazed by how well Blake is doing that he said - why not? Go for it! BUT.... The insurance company is implying that the cytoredcutive surgery (CRS) aka tumor "debulking" will NOT be covered weather HIPEC follows or not. I'm not sure if they're doing this because they think Blake will try to receive the HIPEC anyway (private pay) or if they don't understand that CRS would normally be covered as a standard treatment! I guess you just have to always fight for what you want! Nothing comes easy does it?
Last Wednesday while getting another chemo treatment, we were talking with the chemo nurse about how good Blakes blood work was! It's amazing that, with all the chemo that's been thrown at him, Blake has never had to have chemo delayed, receive a "booster" shot (like neulasta or procrit) or anything because of low/weak blood work! I'm starting to worry that people are going to figure out that he IS Superman!! :)
A PET scan is scheduled for Monday..... I look forward to hearing that it's ALL GOOD because his tumor marker increased this time from 3.1 to 4.0.... Please pray for a good scan. Thanks!
Love, Kathy
Sunday, January 23, 2011
What a week!!!
Blake had the chemo pump removed on Friday and completely crashed this weekend. It's been pretty typical for him to be absolutely exhausted for 2+ days after the pump is removed.
As I suspected, the insurance company said that they will not cover cytoreductive surgery (CRS) if the hot chemo (HIPEC) is included. And, they've gone as far to say that they won't cover CRS at all! I spoke to the professionals at UCSD and they told me it's pretty unethical for the insurance company to take that position. They are confident that they can get the insurance company to at least cover the CRS portion. We spoke with Dr. Whisenant on Friday and he believes that the CRS portion of the surgery will be beneficial with or without the hot chemo. In fact, since Blake continues to do so well, he feels even stronger that this is the right decision. So.......... surgery has been scheduled!
Blake is scheduled to have 2 more chemos and 1 scan before surgery. Right now, it looks like he'll have at least a 5+ week break that will help him get his strength back.
Our whole family was together tonight for Jessica's birthday so we took the opportunity to come up with a game plan for our travel & stay in San Diego. We hope our whole family will be able to be with us during this important time. And, I must say - we have some pretty amazing kids!
ttfn! Love, Kathy
As I suspected, the insurance company said that they will not cover cytoreductive surgery (CRS) if the hot chemo (HIPEC) is included. And, they've gone as far to say that they won't cover CRS at all! I spoke to the professionals at UCSD and they told me it's pretty unethical for the insurance company to take that position. They are confident that they can get the insurance company to at least cover the CRS portion. We spoke with Dr. Whisenant on Friday and he believes that the CRS portion of the surgery will be beneficial with or without the hot chemo. In fact, since Blake continues to do so well, he feels even stronger that this is the right decision. So.......... surgery has been scheduled!
Blake is scheduled to have 2 more chemos and 1 scan before surgery. Right now, it looks like he'll have at least a 5+ week break that will help him get his strength back.
Our whole family was together tonight for Jessica's birthday so we took the opportunity to come up with a game plan for our travel & stay in San Diego. We hope our whole family will be able to be with us during this important time. And, I must say - we have some pretty amazing kids!
ttfn! Love, Kathy
Tuesday, January 18, 2011
Denied again.........
I can't believe that the incredible appeal we submitted to the insurance company has been denied - again. At UCSD, it is possible to private pay for the HIPEC portion but, I *think* they said that the entire procedure would not be covered if HIPEC a part of it... kinda like voiding the warranty if you "chip" your truck. But, just in case I misunderstood, I am double checking this.
The appeal was written by a medical expert/researcher (thanks LP) who consulted Laurie Todd, The Insurance Warrior. In fact, Laurie Todd thought we would win the appeal; I guess she doesn't know this insurance company! AND, (as you know) since we've been trying to get approval since September..... Blakes had to go back on chemo AND, the 1st chemo landed him in the hospital!
For the last few months, I've been trying so hard to remember that while things sometimes suck, they haven't always been horrible. He's successfully fought this beast for 3+ years. However, in the past month, we've lost 3 people that we've come to know through colon cancer. Two were diagnosed 1 year after Blake and the other was only 2 months before. It's hard to remain positive about the time we've had and the time we're going to have when some damn insurance company tries to limit it!
What I want to know is WHO died and made them (IHC) boss? I'm upset. I'm sad. I'm scared. Blake is rolling with the punches and will receive another dose of poisen tomorrow. I love this strong, honorable man.
Thanks for *listening*
Love, Kathy
P.S. Maybe this is our sign that the procedure shouldn't be done..... but, shouldn't it still be Blake's decision?
The appeal was written by a medical expert/researcher (thanks LP) who consulted Laurie Todd, The Insurance Warrior. In fact, Laurie Todd thought we would win the appeal; I guess she doesn't know this insurance company! AND, (as you know) since we've been trying to get approval since September..... Blakes had to go back on chemo AND, the 1st chemo landed him in the hospital!
For the last few months, I've been trying so hard to remember that while things sometimes suck, they haven't always been horrible. He's successfully fought this beast for 3+ years. However, in the past month, we've lost 3 people that we've come to know through colon cancer. Two were diagnosed 1 year after Blake and the other was only 2 months before. It's hard to remain positive about the time we've had and the time we're going to have when some damn insurance company tries to limit it!
What I want to know is WHO died and made them (IHC) boss? I'm upset. I'm sad. I'm scared. Blake is rolling with the punches and will receive another dose of poisen tomorrow. I love this strong, honorable man.
Thanks for *listening*
Love, Kathy
P.S. Maybe this is our sign that the procedure shouldn't be done..... but, shouldn't it still be Blake's decision?
Friday, January 14, 2011
Quiet week....
It's been a pretty quiet week! It seems like Blake's feeling pretty well - just really tired. It's hard to say because if you ask, he'll say.... "I'm fine." I'm sure you've all heard it! :)
We haven't heard from the insurance company! Nothing. Zip, zilch, nadda. Yesterday, I heard of another patient who had the HIPEC procedure submitted for approval to their insurance company this past Monday. On Thursday, she received full approval for the procedure. Unbelievable. We've been messing with this since last September! Go figure!
Another chemo is scheduled for this coming Wednesday. This will be the 3rd treatment since Dr. Whisenant suggested Blake complete 3-4 rounds before the HIPEC procedure. You may remember that he has to be off one of the drugs for 6-weeks so, it looks like we're looking at mid-March for surgery.
If anyone knows of a time share or home rental possibility in the San Diego/LaJolla area (mid-March for 2-3 weeks), please let us know. Thank you.
Love, Kathy
We haven't heard from the insurance company! Nothing. Zip, zilch, nadda. Yesterday, I heard of another patient who had the HIPEC procedure submitted for approval to their insurance company this past Monday. On Thursday, she received full approval for the procedure. Unbelievable. We've been messing with this since last September! Go figure!
Another chemo is scheduled for this coming Wednesday. This will be the 3rd treatment since Dr. Whisenant suggested Blake complete 3-4 rounds before the HIPEC procedure. You may remember that he has to be off one of the drugs for 6-weeks so, it looks like we're looking at mid-March for surgery.
If anyone knows of a time share or home rental possibility in the San Diego/LaJolla area (mid-March for 2-3 weeks), please let us know. Thank you.
Love, Kathy
Sunday, January 9, 2011
Update
Just a quick note to let you know Blake is still doing really well! The nausea hasn't been too bad this round thanks to the new (Emend) and old anti-nausea drugs.
Blakes tumor maker (CEA) dropped from 3.8 to 3.1 after the 1st chemo. Hopefully, this means that he'll have a good response to this chemo - it would be a nice silver-lining.
I heard from the insurance company last Friday. They're sending the appeal out to 4 different groups for a technology review. I asked about the delay and was told that since we copied the Chairman, CEO and President of SelectHealth, it's caused quite a ruccus. I'm not sure if this is good or bad news...... We should know something by the end of the week.
Love, Kathy
Blakes tumor maker (CEA) dropped from 3.8 to 3.1 after the 1st chemo. Hopefully, this means that he'll have a good response to this chemo - it would be a nice silver-lining.
I heard from the insurance company last Friday. They're sending the appeal out to 4 different groups for a technology review. I asked about the delay and was told that since we copied the Chairman, CEO and President of SelectHealth, it's caused quite a ruccus. I'm not sure if this is good or bad news...... We should know something by the end of the week.
Love, Kathy
Wednesday, January 5, 2011
Chemo #29
Chemo #29 was infused yesterday - but, before that a new anti-nausea medicine was given and BOY has it made a difference! Blake had his typical *icky* feeling after the infusion but woke up this morning bright & early and feeling good!! I'm sure the *bright & early* part had something to do with the steroid- but, I'm guessing the *feeling good* part has to do with this new anti-nausea medicine! Just in case you're curious.... it's called Emend and it's not cheap!! I'm told it's about $100 PER pill but our co-pay for 2 pills is $75. I've heard Emend called A-MEN before because of how good it is!!! I'm quickly becoming a believer. And, just to make sure you're becoming a believer too..... Blake worked a 13 hour day today. (Yes, he's crazy.)
Jessica & I were talking yesterday & I said something about the "scoop & the poop" and she said that's what we should call this blog! The Scoop & the Poop. ah-ha! lol....
I can't tell you how good it is to see him feeling so well! Yay!!
Love, Kathy
Jessica & I were talking yesterday & I said something about the "scoop & the poop" and she said that's what we should call this blog! The Scoop & the Poop. ah-ha! lol....
I can't tell you how good it is to see him feeling so well! Yay!!
Love, Kathy
Sunday, January 2, 2011
Happy New Year!
Blake was scheduled to have chemo this last Tuesday but couldn't since he was just released from the hospital! He got really, really sick the day after Christmas and was absolutely lethargic. When he said "we gotta go," off to the hospital we went. After a 6 hour stay in the ER, they admitted him. During his stay, they gave him 8 bags of fluid and he was able to get lots of rest. We're not really sure what the problem was; it could have been a delayed reaction to chemo, food poisening or the flu. Since nobody else got sick, they're blaming it on chemo. But, with Blakes weakened immune system, it could have been some kind of bug and the rest of us fought it off. He's scheduled to have chemo again on Tuesday and (hopefully) it won't happen again! We'll have to make sure he stays hydrated & on-top of his anti-nausea meds.... just in case.
We presented the appeal to SelectHealth on Thursday and hope they decide to allow the HIPEC procedure. We have a very good argument with a lot of information to back it up. I believe we have a pretty good chance in winning so.... keep your fingers crossed!
Blake continues to be very strong & positive and has an awesome attitude. I am in awe.
Hope all is well with you & yours. Love, Kathy
We presented the appeal to SelectHealth on Thursday and hope they decide to allow the HIPEC procedure. We have a very good argument with a lot of information to back it up. I believe we have a pretty good chance in winning so.... keep your fingers crossed!
Blake continues to be very strong & positive and has an awesome attitude. I am in awe.
Hope all is well with you & yours. Love, Kathy
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